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The Gold Standard of Care: Hemophilia Treatment Centers (HTCs)
A Hemophilia Treatment Center (HTC) is more than just a medical office; it is a specialized healthcare hub designed to treat the “whole person” through a comprehensive care model. This national network of over 140 federally funded centers was established to provide state-of-the-art medical and psychosocial expertise in one location. While called “Hemophilia” centers, HTCs provide expert comprehensive care for individuals with von Willebrand Disease (VWD), platelet disorders, and other rare inherited bleeding conditions.
What is Comprehensive Care?
Comprehensive (or integrated) care is a family-centered, multidisciplinary approach to health. Evidence-based studies, including those by the National Bleeding Disorders Foundation (NBDF), (https://www.bleeding.org/sites/default/files/document/files/Guideline-on-Care-Models-for-Hemophilia-Management_0.pdf) have shown that patients who utilize the HTC model of comprehensive care live longer, healthier lives and experience fewer complications than those who see a hematologist alone. This model addresses every facet of a patient’s life, including:
- Physical Health: Management of bleeds, joint health, and dental care.
- Emotional & Social Support: Assistance with the psychological impact of chronic illness.
- Life Navigation: Guidance on insurance, education, and workplace accommodations.
Your Virginia Care Team
In Virginia, four comprehensive centers receive federal and state support to serve our community. At these centers your multidisciplinary team works closely with your primary care provider to ensure a seamless “medical home” experience.
The HTC team typically includes:
- Hematologists: Doctors specializing in blood disorders.
- Nurses: Specialists who provide education and coordinate your ongoing treatment.
- Social Workers: Experts who help navigate daily life, insurance, and emotional health.
- Physical Therapists: Specialists focused on joint health, mobility, and rehabilitation.
- Specialists: Access to orthopedists, dentists, genetic counselors, and nutritionists who understand the nuances of bleeding disorders.
By focusing on prevention and integrated support, Virginia’s HTCs empower patients to be independent, productive, and proactive in managing their health.
Hemophilia Treatment Centers in Virginia
Pediatric Centers
Children’s Hospital of the King’s Daughters (CHKD)
- Pediatric Treatment Center: Hemostasis and Thrombosis Center at CHKD, Children’s Cancer and Blood Disorders Center, 601 Children’s Lane, Norfolk, VA 23507
- Medical Director: Kevin Todd, MD
- Contact: Megan Songer, MSW, LCSW; Megan.Songer@CHKD.ORG
- Clinic Phone Number: 757-668-7243
Children’s National Medical Center/ Fairfax Satellite Center
- Pediatric Hemophilia Treatment Center: 6565 Arlington Boulevard, Falls Church, VA 22042
- Medical Director: Michael Guerrera, MD
- Contact: Elle Levy, RN, MSN, PPNP-BC, CPHON; alevy@childrensnational.org
- Clinic Phone Number: 202-476-3622
- Pediatric Hemophilia Treatment Center: Division of Pediatric Hematology and Oncology, 5th Floor Battle Building, 1204 Main Street, Charlottesville, VA 22903
- Pediatric Medical Director: Colleen Druzgal, MD
- Clinic Phone Number: 434-924-8499
Virginia Commonwealth University
- Pediatric Hemophilia Treatment Center: Children’s Hospital of Richmond at VCU Children’s Pavilion, 1000 E. Broad Street, Richmond, VA 23219, 1st Floor (Skylobby)
- Pediatric Medical Director: Gita V Massey, MD
- Contact: Amy Newcombe, Bleeding Disorders Nurse amy.newcombe@vcuhealth.org; Jenna Richard, Bleeding Disorders Nurse jenna.richard1@vcuhealth.org
- Clinic Phone Number: 804-827-3306
- Mailing Address: Central Virginia Center for Coagulation Disorders, P.O. Box 980461, Richmond, VA 23298
- After Hours/ Emergency on call: (804) 828-0951, ask for the adult or pediatric hematologist on call.
Adult Centers
- Adult Hemophilia Treatment Center: Emily Couric Clinical Cancer Center
1240 Lee Street, Charlottesville, VA 22903 - Adult Medical Director: Louise Man, MD
- Clinic Phone Number: 434-924-9333 Clinic Fax Number: 434-244-7526
- Mailing Address: Division of Hematology/ Oncology, PO Box 800716, Charlottesville, VA 22908
Virginia Commonwealth University
- Adult Hemophilia Treatment Center: VCU Adult Outpatient Pavilion, 1001 E. Leigh Street, 4th floor, Richmond, VA 23219
- Adult Medical Director: Christian Barrett, MD
- Contact: Amy Newcombe, Bleeding Disorders Nurse amy.newcombe@vcuhealth.org; Jenna Richard, Bleeding Disorders Nurse jenna.richard1@vcuhealth.org
- Clinic Phone Number: 804-827-3306
- Mailing Address: Central Virginia Center for Coagulation Disorders, P.O. Box 980461, Richmond, VA 23298
- After Hours/ Emergency on call: (804) 828-0951, ask for the adult or pediatric hematologist on call.
How We Support the Bleeding Disorders Community
VABDF’s services and programs are designed to support individuals and families at every stage of life, from newly diagnosed children to adults navigating healthcare and everyday life with a bleeding disorder. Learn more about what we offer →
Education
VABDF hosts educational programs, and community learning opportunities that help individuals and families better understand bleeding disorders and available resources, including scholarships and financial assistance.
Get Involved
Ways to support the bleeding disorder community in Virginia:
- Make a donation
- Join The Hope Society: Become a monthly donor — no amount is too small — and help sustain our programs all year long.
- Spread Awareness by following and engaging with our social media channels, share our educational posts, or start your own Facebook Fundraiser to benefit VABDF.
- Become a Sponsor: Email info@vabdf.org for more information.
- Join our email newsletter